Photography

Photography recently has become a huge part in my life. As many of my readers are aware, my passion was to become a Paramedic but sadly due to my health being so cruddy I've recently had to live up to reality and crush that dream (for now at least). I have invested in a new DLSR camera and have started to put my photos onto cards and postcards to try ad sell them as a hobby and make some money for my new aspirations in life. (Well, it was a back up dream I've always had) which is... Setting up a fully disabled friendly photo studio to allow all walks of life to be able to have family photos, portraits and great photos for their walls. Yes your probably thinking this is a huge change in careers, but photography is a huge passion in my life and has always been since I first discovered a camera and I'm hoping that I can make this into my new life passion to keep me motivated and going. Please check out my Facebook page and share amongst everyone you know, the support will do me wonders!! https://www.facebook.com/CharlieWarliePhotography?ref=hl TTFN XXXX

Hospitals And Their Sucky Moments!!

Just over a week ago now I had yet another admission, thankfully (I say this but I guess its not really) It was only short lived. That was because I self discharged. Yes I know silly me but hear me out... Yet again I had been spoken to like a piece of rubbish by a particular Doctor, to which he also tried stopping all my maintenance medication by saying I didn't have asthma. The Ironic thing is though he wanted to keep me on Iv Aminophylline for a few days that had been started. ER if I don't have asthma then please stop giving me poisonous drugs thanks!! Either way all had continued including my maintenance medication. Along with all these nasty drugs I also had to suffer having 10 litres of oxygen, so lots of nosebleeds were occurring. By the Saturday evening I had yet again been spoke to like a piece of crap by the same Doctor so I decided enough was enough, I was going home. off comes the oxygen and outcomes the drips. I'm off and tough if they don't like it. As soon as I got home, I wrote all my thoughts down which took up three pieces of paper (whoops) and emailed it straight to my Consultant in my local hospital and my other Consultant in Birmingham. By 0830 Monday morning I had a reply back from Birmingham and lets just say that they are not happy with my treatment at all and are getting on the case straight away. Sadly to say though, but not surprisingly my local hospital still haven't replied. Just shows how uncaring they are really doesn't it. I do have my local hospital as an outpatient on the 6rd of June though so it will be brought up again and I wont be leaving until I know I can trust the hospital with handling with my life. On other notes, I have an appointment with the Gastro team on the 3rd Jully so fingers crossed plans for my tummy surgery and start being made and on the 30th July I have the immunologist team so hopefully they can figure out why I'm having so many allergic reaction. its all going on!! TTFN XXXXX

What A Busy Few Weeks

Since speaking to all you loverly people a few weeks back I have been super busy.

Whoops it would seem i forgot to press post on this blog from february. Have fum getting confused now hey!! To feedback from my last post, my DLA tribunal went ace, got the higher rate of both mobility and care, a judge, doctor and dla representative all with a brain to see how limited my life is.

Myself and mum went house hunting, found a lush little cottage in Wellington, but sadly it just wasnt practical for us at all. The hunt continues and we found a super amazeballs two bed house around the corner from where we currently are, and it is the best for us as its small and manageable plus it has bathrooms both up and down stairs, also a huge walk in shower which will help me loads. To top it off, we move in on Wednesday so me and mum are super busy packing (hence the shoddy lack of blogging again)

Sadly I also had an admission to hospital with my lungs again, chucked a huge paddy and 24 hourd late I asked to be discharged as was far from happy. 3 days down the line and I have the biggest infection going, great timing on my behalf yet again!!

On much much much more happier notes, week monday and its my birthday, going to be the grand old age of 22 hey, far to old for my liking, I want to to be 22months ald agin, sound much more of a better life.

Even happier notes yet again, in 6 days time I will b picking up the stunning other half from Exeter to which she will be staying with me untill Tuesday and we then both drive back down to Cornwall and ill be staying with her for a week and boy wont that week going to be busy as we have, my birthday, sponsored walk, valentines day and a wedding all in that week ooo and were going to the zoo, so excited as I miss her massively!!

Random notes, just thought I would share with you that soon I will be investing in a super sonic camera, and hopfully going to start doing so proper amazing photos for people to start to raise some funds to help me and mum out.

Well, that be all for now, sorry its a small catch up, but Ill let you all nnow how the move went and when I next have internet!!

TTFN
XXXX

Asthma

Last year I made a video for youtube about my asthma. As not much has changed with treatment, hospitals and general care i wanted to re push my story. My story has changed slightly now especially with regards to the level of admissions.

Please take the time to watch the video its literally 3 minutes of your life. Not much compared to what a person suffering from asthma goes through daily hey!! 

http://m.youtube.com/watch?v=dQUA83aCTJA

TTFN
XXXX

Here, There and Everywhere

I have no idea why I tend to leave blogging for so long as I forget where I last left things and I forget how much Ive done in that time so here goes ... and it will probably not be in the order in which I done it either!!

So first up, because I have the most amazing mum in the world who looks after me so well, and puts up with a lot from me I decided that she needed a holiday and that I was going to treat her, so I told her that she had 24 hours to find a nice holiday lodge that would be dog friendly and that we were going the last week of April so she best get looking and fast. she found a place called Honeysuckle lodge, and one thing I forgot to mention to mum is that I wasnt rich, but she loved the look of it and the next thing I know Im booking it,

Honeysuckle Lodge

The lodge was the most beautiful looking thing I have every stage in. The views when i woke up every morning were stunning and that was before I even moved in my bed as the beds were placed directly facing the windows to we had something amazing to look at from the moment we woke the moment we went to bed. During the week holiday we had done some much that I was exhausted and sadly my legs couldnt hold me any longer and the gave way (serves my right really for not using my crutches). We visited 3 beached, the lost garden of heligan, gardens of trebah, had a suprise dinner with mum and Sophie's parents (and thankfully the got on amazingly) and we also went around lost off different towns ranging from Boscatle to Perranporth. Thankfully the weather was the best weve had this year and we even caught some rays. Mum had had the most amazing chilled out week she has had in a long time, so much so that she didnt want to come home. So I think my goal had been achieved for saying thank you. Love you mum!!

Lost Gardens of Heligan

Gardens of Trebah

Before our lush holiday I had been back up to Heartlands hospital for my 3 monthly appointment. Sadly my lung function was still only 52%. this is a bonus of course as the last time it was 47% but its still not perfect. My consultant has decided that my reflux is getting far to out of control and that it is time for me to have surgery (fundoplication). Now many people say that this is a minor operation, and yes I agree to some degree as nothing is being removed and nothing is being added BUT for me this is a huge thing as the last time I had surgery I stopped breathing as I had an allergic reaction to the anaesthetic, so its fair to say, its a huge operation to me. On top of this, Im not looking forward to being on liquidized food for 2 weeks following the surgery either. YUCKY!!

I did ask the question of what more there is for me following the operation for if it didnt work, and my consultants response was, I have more up my sleeve, but try and be positive. This is great but as this has been going on now all my life, I am starting to feel that Asthma is actually taking over my life and it is restricting me so much that I cant handle it any more!! I also discussed with my consultant that I didnt want to be on steroids anymore and he told me that I have to, im not allowed lower that 10mg so instead of being on the high dose I was on we decided to do a drastic dose straight from 40mg to 10mg and boy havnt I paid for it since, for a week flat (and still on and off now) I was getting severe nightmares that scared the poop out of me and resulted in me just not sleeping as they were to nasty. then when the nightmares started dyeing down a little and I managed to get a little bit of sleep, my body would only let me have about 2 hours at a time before it was telling me I had to be awake again. SUCKY much!! On top of the horrid dreams, I have had a headache now for the whole time that I have been on this low dose steroid, my joints and muscles have been in agony and ive been eating paracetamol and tramadol like its going out of fashion!! I generally cant wait for things to start improving health wise!!

I also had an admission which wasnt all that nice as I ended up on lots of oxygen again IV aminophylline. I have to say this is starting to be a regular occurance now which im not liking as they are also really struggling to get IV access with me and when they do they soon collapse. I have talked to consultants about having a port a cath fitted but currently they are saying that whilst they can find a vein under ultrasound scan they will continue to do so. which I have to say sucks a little bit as im ending up with stained skin where im constantly bruising and they just arent healing properly. 

Before all the above had happened, mum had also sadly collapsed and went unconscious on me. it was super scary as I couldnt move fast enough like I used to to help her. I got an ambulance as soon as possible as she was knocked out for a good 5 mins and even when she came around I didnt have the strength to lift her. As it turned out the paramedics didnt want her lifted untill they got there anyhow just incase she had hurt herself. Mum did have to spend the night in hospital as it turned out her blood pressure was mega low, nd this was probably due to stress because of the split and all the hassle still going on with her ex. It seems that even though we have moved out from them they are still causing hell. So the much needed holiday from about was most certainly needed for more that my reasons of giving mum a break for myself!!

Well I think that has been the highlights of my life so far!!

TTFN

XXXX